THE GREAT HNRNPH2 WALK 2023
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WE’RE WALKING 100K IN a day FOR HNRNPH2 CHILDREN
HNRNPH2 Neurodevelopmental Disorder is an ultra-rare genetic condition affecting children like Autumn. HNRNPH2 impacts every part of these children’s lives. Walking. Talking. Eating. What we take for granted, they take on their shoulders every day. Add on social anxiety, seizures, and scoliosis and everyday life becomes even more challenging.
WE’RE WALKING for the cure
We need to raise more research funds to drive further understanding how to switch off the ‘faulty’ HNRNPH2 gene (animal studies have demonstrated this is possible). The roadmap to a cure is a reality and the only hope to help our children develop and lead their lives to the fullest. We need your support to fund the scientists work on the path to a cure
WE’RE WALKING because it’s hard
Without a cure, HNRNPH2 children will most likely spend their entire lives in care. They need round-the-clock help and as much as help as support as possible to aid their learning and development. Hope is important. Help is vital. Walking is the first step.
the walk
09-10 september 2023
GRAND UNION CANAL
MILTON KEYNES TO CAMDEN
We’re encouraging everyone who wants to join the walk to walk as much as they can, whatever they can.
A team of core Great walkers will be taking on the challenge of 100km in 24 hours. Other walkers will join along the way, some for a 100 metres, some for 10 kilometres.
Starting in Bletchley at 10am Saturday 9th September we’ll be aiming to reach the finish line by 10am Sunday 10th September.
HNRNPH2 EXPLAINED
An ultra-rare genetic condition discovered only a few years ago. Scientists around the world are learning more about HNRNPH2, the prognosis, treatment and how to develop a cure.
Find out more about the amazing work the Yellow Brick Road Project are doing to support HNRNPH2 kids around the world.
RAISING £10K FOR RESEARCH
We’re raising funds to help the Yellow Brick Road Project and the research they support.
The Yellow Brick Road Project is an incredible charity set up by HNRNPH2 parents that is funding groundbreaking research teams to better understand how H2 impacts children and how a cure could be developed for future human trials.
WE NEED YOUR HELP
Please donate what you can to support our HNRNPH2 children, the Yellow Brick Road Project, and the Great HNRNPH2 Walk team.
HOW YOU CAN HELP
DONATE
The best way to support is to help us reach our goal of £10,000. Donate on the Just Giving page here
Please share with your friends, work and network. We need as much coverage as possible to help our HNRNPH2 kids
SHout
Our walkers need all the support they can get - food, transport, walking gear and comms - if there’s anything you can help supply please get in touch
